Megan was diagnosed at the age of four with Mucopolysaccharidosis Sanfilippo A (MPS III A).
MPS III A is an enzyme deficiency where Megan does not have the enzymes to break down the sugar cells we produce in our bodies.
The disorder then attacks her joints and organs.
Megan also had a procedure in 2006 to lengthen the ligaments in her ankels in hopes to help her walk for a longer period of time.
In January of 2009, Megan had the procedure for a G-tube which allowed us to provide all of her meds and nutrition through the feeding
tube and avoiding the risk of her aspirating.
Also in 2009, Megan became wheelchair bound. Amazingly enough, when she was at school, RISE Learning Center, the awesome staff would
actually get Megan in their pool for therapy and with assistance she could still walk in the pool.
But in August 2011, she struggled with aspiration pneumonia several times and ended up at Riley Hospital for Children for treatment on three
In September 2011, we were told to do something no parent wants to hear..."take your daughter home and start hospice care. She probably has just
weeks to live."
Obviously the docs didn't know Megan still had work to do on this earth.
The weeks turned into months and she continued to amaze all of us!
Then on May 25, 2012, with her family surrounding her, she earned her angel wings!
We know that Megan is no longer suffering and is having a great time in Heaven with her Grandpa Bach, Uncle Pete, Grandma Dorothae and many others.
But we still miss her so much and wish we could hug her one more time.
We think of her daily and thank her for all of the GREAT memories she created with us!
Thanks Doodle Bug!
The Weisenbach's - Tom, Theresa, Kayla & Abbey
For more information on MPS check out The National MPS Society's Website.